AoU Research Priorities Use Cases

Determine the long term pulmonary and cardiovascular consequences of premature birth from childhood into adulthood

Last Edited by Eric Austin

This study will enroll premature infants at the time of birth, in order to follow the children in phases from birth to adulthood to test the central hypothesis that premature birth permanently impairs normal pulmonary and cardiovascular development, resulting in the development of common and rare cardiopulmonary conditions which reduce cardiopulmonary function throughout life. Phase one will study children from birth to age 8 years of age, with subsequent phases to study older ages.

The remaining questions allow you to outline in more detail the information needed to address your research question. The series of questions allow up to five entries. If you have more than five entries, please try to prioritize them and enter the remainder in the final field. When done, click Submit at the bottom. Yes

Select your required Data Item #1, which is most important to your study. This would be an item that needs to be generated and collected from different sources using various procedures, tools, techniques, assays, etc. If not in the current selection, please enter it in the textbox below. History, health

If you did not find your Data Item #1 in the dropdown selection above, please enter it here. Focus on pulmonary disease conditions

By what method will Data Item #1 be obtained? This may Include procedures, tools, techniques, assays, and analytical approaches for the collection, measurement, or analysis of data. If you do not find the required method, you may enter it in the textbox below. Electronic Health Records (EHR)

Are there specifications that apply to the method by which Data Item #1 will be obtained, e.g., is the measurement taken once a year, every month, or some other variation? If you do not find your specification in the dropdown, you may enter it in the textbox below. Once per year

Data Item #2 Blood pressure

Specification #2 Once per year

If Data Item #3 was not in the dropdown, please enter it here Pulmonary function testing

If Method #3 was not in the dropdown, please enter it here Pulmonary function testing

If Specification #3 was not in the dropdown, please enter it here Once per year, starting at age 5 years

If Data Item #4 was not in the dropdown, please enter it here left and right ventricular (LV and RV) structure and function

If Method #4 was not in the dropdown, please enter it here Echocardiogram

Specification #4 Every two years

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Idea No. 441