AoU Research Priorities Use Cases

Do tailored educational materials for patient-participants undergoing pharmacogenetic testing promote patient engagement?

Last Edited by David Galey

To assess and compare the level of understanding, engagement and satisfaction in patients who received pharmacogenetic results and are randomized to 1) a web-based portal with personalized educational content tailored to subject's results or 2)standard of care. Subjects will be surveyed to determine 1) understanding 2) engagement and 3) satisfaction.

The remaining questions allow you to outline in more detail the information needed to address your research question. The series of questions allow up to five entries. If you have more than five entries, please try to prioritize them and enter the remainder in the final field. When done, click Submit at the bottom. No

Select your required Data Item #1, which is most important to your study. This would be an item that needs to be generated and collected from different sources using various procedures, tools, techniques, assays, etc. If not in the current selection, please enter it in the textbox below. Perceived outcomes - patient

By what method will Data Item #1 be obtained? This may Include procedures, tools, techniques, assays, and analytical approaches for the collection, measurement, or analysis of data. If you do not find the required method, you may enter it in the textbox below. Survey

If you did not find your methodology specifications for Data Item #1 above, please enter it here. pre-intervention, post-intervention and then between 6 months to one year later

Data Item #2 Genome

Method #2 Whole Genome Sequencing (WGS)

Specification #2 Once

Data Item #3 Behavioral measures

Method #3 Survey


15 votes
Idea No. 379