AoU Research Priorities Use Cases

How do different health conditions and treatments affect health-related quality of life? How do effects vary with other factors?

Health-related quality of life (HRQOL) is a common metric for individual and population health and for comparing outcomes across health conditions. Utility-based HRQOL measures are used to estimate Quality-Adjusted Life Years for cost-effectiveness and other studies. Including utility-based HRQOL in regular AOU data collections (baseline onward) will support myriad statistical, modeling, and evaluation studies by combining other AOU data on patients, conditions (esp. chronic), and treatments.

The remaining questions allow you to outline in more detail the information needed to address your research question. The series of questions allow up to five entries. If you have more than five entries, please try to prioritize them and enter the remainder in the final field. When done, click Submit at the bottom. No

If you did not find your Data Item #1 in the dropdown selection above, please enter it here. Utility-based HRQOL measure - e.g., from PROMIS (free), or SF-6D, EQ-5D, HUI-3, QWB

By what method will Data Item #1 be obtained? This may Include procedures, tools, techniques, assays, and analytical approaches for the collection, measurement, or analysis of data. If you do not find the required method, you may enter it in the textbox below. Survey

Are there specifications that apply to the method by which Data Item #1 will be obtained, e.g., is the measurement taken once a year, every month, or some other variation? If you do not find your specification in the dropdown, you may enter it in the textbox below. Once per year

If you did not find your methodology specifications for Data Item #1 above, please enter it here. Baseline + annual + following significant health events -- greater frequency may add value

Data Item #2 Sociodemographics

Method #2 Survey

Specification #2 Once per year

If Data Item #3 was not in the dropdown, please enter it here Medical diagnoses

Method #3 Electronic Health Records (EHR)

Specification #3 At specified times anchored to the clinical event

If Data Item #4 was not in the dropdown, please enter it here Medical interventions (treatments)

Method #4 Electronic Health Records (EHR)

Specification #4 At specified times anchored to the clinical event

If Data Item #5 was not in the dropdown, please enter it here Behavior modifications (e.g., diet, exercise, sleep)

Method #5 Survey

Specification #5 Once per year

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Idea No. 818