The shared goal of NIH and the participants is to reduce the burden of illness across conditions and segments of the population. How to capture burden of illness due to this variety of health conditions on an individual basis? A validated, standardized measure of disability would be extremely valuable to ascertain the impact of the various conditions on function in All of Us. Plan might be to assess the various, validated scales then customization and piloting a scale for use in All of Us.
Idea No. 244