AoU Research Priorities Use Cases

What are the personal narratives of those receiving genetic test results (when available)?

Longitudinal narrative inquiry capturing diverse voices of study participants receiving genetic test results has the potential to fill gaps in the understanding of individual/family expectations; reactions; actions; and outcomes. Objectives: assess attitudes, literacy, perspectives about receiving genetic test results, implications of results for self/others, family communication pathways, and valued resources. Qualitative analysis of interviews will offer insights of their journey overtime.

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Idea No. 827