AoU Research Priorities Use Cases

What barriers prevent people from volunteering as medical research subject?

To determine the barriers that prevent people from volunteering for medical research studies several questions need to be answered. The methods of advising people of studies for which they qualify need to be examined annually. The methods of reducing perceived risks for volunteering to participate in research should be examined. Successful methods of recruitment across the medical community need to be evaluated and replicated, if possible. The use of a Nationwide registry should be addressed

The remaining questions allow you to outline in more detail the information needed to address your research question. The series of questions allow up to five entries. If you have more than five entries, please try to prioritize them and enter the remainder in the final field. When done, click Submit at the bottom. Yes

Select your required Data Item #1, which is most important to your study. This would be an item that needs to be generated and collected from different sources using various procedures, tools, techniques, assays, etc. If not in the current selection, please enter it in the textbox below. History, health

By what method will Data Item #1 be obtained? This may Include procedures, tools, techniques, assays, and analytical approaches for the collection, measurement, or analysis of data. If you do not find the required method, you may enter it in the textbox below. Claims data

Are there specifications that apply to the method by which Data Item #1 will be obtained, e.g., is the measurement taken once a year, every month, or some other variation? If you do not find your specification in the dropdown, you may enter it in the textbox below. Include child, teenager, early adult, adult, elderly

Data Item #2 History, family

Method #2 Death certificates

Specification #2 Once

Data Item #3 Behavioral measures

Method #3 Survey

Specification #3 Once per year

Data Item #4 Clinical outcomes

Method #4 Clinical diagnostic tests

Specification #4 At specified times anchored to the clinical event

Data Item #5 Feelings about health research

Method #5 Survey

Specification #5 Once

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Idea No. 819