AoU Research Priorities Use Cases

Will the All if Us data compilation and subsequent research be used to treat and eradicate renal medullary carcinoma?

I have a cousin who is undergoing chemotherapy for renal medullary carcinoma, a cancer specific to patients with sickle cell. Aside from the fact that we need to discover a means of eradicating sickle cell from our planet, will the All of Us program be used to further research into the development of better treatment options for patients who develop this cancer? The pool of candidates is very small due to rarity of the incidences of the cancer.

The remaining questions allow you to outline in more detail the information needed to address your research question. The series of questions allow up to five entries. If you have more than five entries, please try to prioritize them and enter the remainder in the final field. When done, click Submit at the bottom. No

Select your required Data Item #1, which is most important to your study. This would be an item that needs to be generated and collected from different sources using various procedures, tools, techniques, assays, etc. If not in the current selection, please enter it in the textbox below. Cancer incidence

By what method will Data Item #1 be obtained? This may Include procedures, tools, techniques, assays, and analytical approaches for the collection, measurement, or analysis of data. If you do not find the required method, you may enter it in the textbox below. Clinical diagnostic tests

Are there specifications that apply to the method by which Data Item #1 will be obtained, e.g., is the measurement taken once a year, every month, or some other variation? If you do not find your specification in the dropdown, you may enter it in the textbox below. Continuous monitoring

Data Item #2 History, family

Method #2 Blood test

Specification #2 Once

Data Item #3 Perceived outcomes - patient

Method #3 Whole Genome Sequencing (WGS)


2 votes
Idea No. 155