Showing 2 ideas for tag "data-management"
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AoU Research Priorities Use Cases

How can "All of Us" researchers collaborate to address differences and unique patterns of every individual?

Each of Us is Unique, All of Us should work together. Some diseases are generously funded because advocacy groups have powerful lobbying arms. Every individual affected could potentially contribute valuable data to different medical subspecialities. We should not box people in ICD codes, but use a narrative-based approach, stop dismissing patients' observations and patterns of limited significance - as it could lead to... more »

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AoU Research Priorities Use Cases

how to make RCT more efficient

All of US data source could be use to identify cohorts of individuals with key data already in the system that would be eligible to specific randomized control trial focused on treatment or prevention of certain rheumatic diseases. Such approach could substantially reduce the time required to fully enroll into clinical trials and also potentially reduce costs related to some specimen collection

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