Showing 3 ideas for tag "engagement"
(@pharmgkbfeedback) kudos icon +

AoU Research Priorities Use Cases

Do tailored educational materials for patient-participants undergoing pharmacogenetic testing promote patient engagement?

To assess and compare the level of understanding, engagement and satisfaction in patients who received pharmacogenetic results and are randomized to 1) a web-based portal with personalized educational content tailored to subject's results or 2)standard of care. Subjects will be surveyed to determine 1) understanding 2) engagement and 3) satisfaction.

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(@carolynpneuhaus) kudos icon +

AoU Research Priorities Use Cases

How can the All of Us Research Project most ethically motivate active participation in the cohort over many years?

The All of Us Research Project's success depends on public trust, active participant involvement, and long-term support from all stakeholders. All of Us should support ethics and qualitative research on questions related to participant engagement and incentives such as: What constitute ethically appropriate incentives? How can All of Us encourage participation of less engaged groups and individuals to ensure that the... more »

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(@raganhart) kudos icon +

AoU Research Priorities Use Cases

Could utilization of blockchain technology increase AoU participant engagement and retention?

In Power to the People:Data Citizens in Age of Precision Medicine "solution[s] may lie in embracing broader concept of autonomy empowers individuals to protect their interests by exercising meaningful rights of data citizenship". Using distributed ledger technology (a public or private) provides advanced privacy&security measures that data warehouses, gatekeepers of citizens' genetic/genomic data, etc. would be remiss... more »

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