I would like to do a longitudinal study of patients that utilize patient portals and those that do not. This would be a continuous assessment of the cost of healthcare, the number of tests given, outcomes, and overall health assessment for individuals of similar demographics and health statuses. Does the increase in availability of information cause a positive, negative, or an unnecessary impact on the patient's health... more »

This study will focus on the entire cohort ages 50 or older and provide outcomes on bisphosphonate use and movement. The information will help to develop more precise strategies to target individuals who would benefit from bisphosphonates or other interventions for the prevention of bone fractures.

Evaluate records. Carrier status positive for mother then father, then if unborn child was tested, if carrier status was positive for both parents. Identify costs of testing and how many unborn children actually has SMA.
Identify, if this information (carrier status) created a decision to terminate pregnancy, helped parents prepare or just created unwarranted fear. How often did genetic testing on unborn fetus cause a... more »

With all feasible tools (diary, receipts, credit card records, third party validation), record all expenses (real and in-kind) from self and all payers, related to personal health, fitness, and illness on a representative subset of cohort (ethnic, geographic, income, education, gender, age, etc). Correlate with acute, intermediate, and long-time health outcomes, and track for a decade. Keep within the high priority category... more »