(@jjenkins45)

AoU Research Priorities Use Cases

What are the personal narratives of those enrolled in the All of Us Research Program?

This Research Program has the potential to advance scientific advances because of participant decisions to enroll. Longitudinal personal narratives will capture personal and community perspectives on learning about the program; decision factors to becoming involved; expectations; experiences (good/bad); communication pathways; and outcomes. Building on data that provides insights using qualitative data analysis of interviews... more »

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3 votes
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(@sjogrens.syndrome.foundation)

AoU Research Priorities Use Cases

Can we improve the identification and management of Sjögren's in children?

Children often present differently with Sjögren's when compared with adults leading to delayed diagnosis and treatment. Additionally, awareness of Sjögren's in children among clinicians is low, which may further delay diagnosis and treatment. This study would focus on learning how to better identify, manage, and treat Sjögren's in this special population and how disease expression and pathways differ in children compared... more »

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20 votes
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(@sjogrens.syndrome.foundation)

AoU Research Priorities Use Cases

Can we improve the identification and management of Sjögren's in children?

Children often present differently with Sjögren's when compared with adults leading to delayed diagnosis and treatment. Additionally, awareness of Sjögren's in children among clinicians is low, which may further delay diagnosis and treatment. This study would focus on learning how to better identify, manage, and treat Sjögren's in this special population and how disease expression and pathways differ in children compared... more »

Voting

20 votes
Ideate

AoU Research Priorities Use Cases

How can we increase the awareness of the signs of lung disease, with the purpose of early diagnosis and treatment?

Lung disease, particularly COPD, is the third largest killer among diseases in the United States, and fourth in the world. Nonetheless, the early signs of the diseases are subtle and slow to advance, leading to late diagnosis. Once diagnosed, there is a great reluctance to the lifestyle changes necessary to slow the advancement of the disorder. Smoking addiction, the stigma of smoking history, reluctance to show weakness... more »

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11 votes
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