Showing 3 ideas for tag "cell"
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AoU Research Priorities Use Cases

Sickle Cell Disease; A Proactive vs. Reactive approach to reduce incidence/prevalence and suffering.

SREAM (Sickle Cell Research Education Action Mission) Tour. Target 80% HBCU campuses.Test, research # of students impacted and prior knowledge; Most are not informed and updated on conception options if desired. Have campus debates on issue and live stream some to bring awareness and broad education. Tay Sachs disease was almost erradicated through a proactive approach of targets; it's time for us to stop reacting, waiting... more »

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(@r.umrani) kudos icon +

AoU Research Priorities Use Cases

What is the effect of exercise on pain levels in individuals with sickle cell disease?

Goal: determine the effect of regular and structured exercise on pain levels in individuals with sickle cell disease.
Method: RCT with a group who perform at least 150 mins a week of moderate physical activity eg 30 mins of weight lifting 5days/week
Track daily pain levels using numeric pain rating scale from individuals in the exercise group, and the control. Can also track pain episodes and crises per individual, and... more »

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AoU Research Priorities Use Cases

Will the All if Us data compilation and subsequent research be used to treat and eradicate renal medullary carcinoma?

I have a cousin who is undergoing chemotherapy for renal medullary carcinoma, a cancer specific to patients with sickle cell. Aside from the fact that we need to discover a means of eradicating sickle cell from our planet, will the All of Us program be used to further research into the development of better treatment options for patients who develop this cancer? The pool of candidates is very small due to rarity of the... more »

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