Each of Us is Unique, All of Us should work together. Some diseases are generously funded because advocacy groups have powerful lobbying arms. Every individual affected could potentially contribute valuable data to different medical subspecialities. We should not box people in ICD codes, but use a narrative-based approach, stop dismissing patients' observations and patterns of limited significance - as it could lead to... more »
There is a need to consider how these data will integrate with existing data systems at the outset of the AoU data collection. In order to answer complex, system-level questions about health causes and outcomes. Doing so will speed innovation in this space. Inclusion of social system data is critical.