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AoU Research Priorities Use Cases

What is the effect of the individual’s family and community network on health status and health behaviors?

Focusing on the entire cohort, this study seeks to define inter-relationship linkages between the person (“ego”) and other associated participants (“alters”). Previous studies identified linkages through the specification of a family roster and alternate points of contact in the consent process. The relationship data produced would be available for network analysis to determine the impact of the social network on health ...more »

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AoU Research Priorities Use Cases

Can Electronic Health Records (EHRs) be effectively utilized to facilitate clinical trials in pediatrics?

Use of EHRs in interventional trials is challenging due to lack of standardization and harmonization. There is a need to incorporate common data elements (developmental data, symptoms), establish linkages (event flags; real-time links for diagnosis, treatment and adherence), enhance interoperability across vendor systems, standardize adverse event capture, develop identification for phenotypes or rare diseases, and streamline ...more »

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