(@jjenkins45)

AoU Research Priorities Use Cases

What are the personal narratives of those receiving genetic test results (when available)?

Longitudinal narrative inquiry capturing diverse voices of study participants receiving genetic test results has the potential to fill gaps in the understanding of individual/family expectations; reactions; actions; and outcomes. Objectives: assess attitudes, literacy, perspectives about receiving genetic test results, implications of results for self/others, family communication pathways, and valued resources. Qualitative ...more »

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(@jjenkins45)

AoU Research Priorities Use Cases

What are the personal narratives of those enrolled in the All of Us Research Program?

This Research Program has the potential to advance scientific advances because of participant decisions to enroll. Longitudinal personal narratives will capture personal and community perspectives on learning about the program; decision factors to becoming involved; expectations; experiences (good/bad); communication pathways; and outcomes. Building on data that provides insights using qualitative data analysis of interviews ...more »

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