(@alan.sanders.md)

AoU Research Priorities Use Cases

Which genetic and environmental factors contribute to sexual orientation, and related health conditions?

Gays, lesbians, and bisexuals are underrepresented in biomedical research. While much relevant data is already planned for collection by AllofUs, additional or elaborated measures (see "data items") would help in seeking new leads and advancing work on pre-existing questions in the field. These items include sociodemographic (e.g., trait information), clinical (various associated conditions), and biological (genomic,... more »

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30 votes
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(@lyn.jakeman)

AoU Research Priorities Use Cases

What is the impact of access to age, gender, or ethnic-appropriate specialty care on patient outcomes across the lifespan?

Economic and sociological drivers impact access to individualized specialty health care. This study would examine the role of age (pediatric, geriatric), gender, or ethnicity specialty expertise on patient outcomes. Demographic information would be combined with survey information about access to specialty medical care expertise. Outcomes would be determined by PPI and EHR, to include admissions, length of stay, disability... more »

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49 votes
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(@fearnp)

AoU Research Priorities Use Cases

What if any are the differences in health outcomes for genetic versus self-reported demographics?

What if any are the differences in terms of cancer incidence and treatment outcomes for genetic demographics (biological sex, ethnicity) versus comparable self-reported demographics (gender, race, nationality)? The goal of this research would be to explore the relative contribution on disease, health, and outcome of genetically determined demographic characteristics versus personal, social or culturally determined demographic... more »

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11 votes
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