(@megan.roberts)

AoU Research Priorities Use Cases

How does genetic literacy influence and inform patient engagement, expectations and healthcare utilization efforts?

Genetic literacy can be defined as one's ability to understand concepts important to the use of personal genetic information. We propose that All of Us participants complete brief baseline survey items related to genetic literacy as part of the Participant-Provided Information (PPI; The Basics). We would explore the association between genetic literacy and outcomes such as patient engagement in All of Us, expectations... more »

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4 votes
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(@megan.roberts)

AoU Research Priorities Use Cases

How does genetic literacy influence and inform patient engagement, expectations and healthcare utilization efforts?

Genetic literacy can be defined as one's ability to understand concepts important to the use of personal genetic information. We propose that All of Us participants complete brief baseline survey items related to genetic literacy as part of the Participant-Provided Information (PPI; The Basics). We would explore the association between genetic literacy and outcomes such as patient engagement in All of Us, expectations... more »

Voting

4 votes
Ideate
(@chouws)

AoU Research Priorities Use Cases

How does participants’ health literacy (HL) level compare to national estimates and what is the role of HL in health outcomes?

Populations of limited health literacy have traditionally been underrepresented in genomic/genetic studies. We propose that All of Us participants complete brief baseline HL survey items as part of the Participant-Provided Information (PPI; The Basics). HL measures can be analyzed in comparison with national estimates and in conjunction with other All of Us measures (e.g., uptake on genetic testing, behavioral outcomes,... more »

Voting

12 votes
Ideate
(@chouws)

AoU Research Priorities Use Cases

How does participants’ health literacy (HL) level compare to national estimates and what is the role of HL in health outcomes?

Populations of limited health literacy have traditionally been underrepresented in genomic/genetic studies. We propose that All of Us participants complete brief baseline HL survey items as part of the Participant-Provided Information (PPI; The Basics). HL measures can be analyzed in comparison with national estimates and in conjunction with other All of Us measures (e.g., uptake on genetic testing, behavioral outcomes,... more »

Voting

12 votes
Ideate