(@sjogrens.syndrome.foundation)

AoU Research Priorities Use Cases

How can we better treat tinnitus and hearing loss as a side effect of hydroxychloroquine and other medications?

Tinnitus and hearing loss can occur as a side effect of hydroxychloroquine and other medications, which are frequently prescribed to treat symptoms of Sjögren's and lupus. This study would focus on identifying how we can reduce the risk of these hearing-related symptoms and investigate potential ways to restore full hearing.

Voting

15 votes
Ideate
(@sjogrens.syndrome.foundation)

AoU Research Priorities Use Cases

How can we better treat tinnitus and hearing loss as a side effect of hydroxychloroquine and other medications?

Tinnitus and hearing loss can occur as a side effect of hydroxychloroquine and other medications, which are frequently prescribed to treat symptoms of Sjögren's and lupus. This study would focus on identifying how we can reduce the risk of these hearing-related symptoms and investigate potential ways to restore full hearing.

Voting

15 votes
Ideate
(@sjogrens.syndrome.foundation)

AoU Research Priorities Use Cases

How can we better address retinal damage related to the use of hydroxychloroquine?

Retinal damage is a serious and feared side effect of hydroxychloroquine, a frequently prescribed treatment for Sjogren's and lupus patients. Though we have sensitive tests and guidelines for monitoring patients on the therapy, more information is needed on how we can reverse the potential progression of damage once it has been detected.

Voting

12 votes
Ideate
(@sjogrens.syndrome.foundation)

AoU Research Priorities Use Cases

Can we better determine which Sjögren's mothers are at risk of having babies with fetal heart block and prevent its occurrence?

It is known that the autoantibody SSA can lead to heart block in the fetuses of mothers with Sjögren's and lupus. However, not everyone who is positive for SSA has a fetus with heart block. This study would focus on fine-tuning the risk factors for fetal heart-block in to improve the odds of preventing its occurrence

Voting

18 votes
Ideate