(@mbl2018)

AoU Research Priorities Use Cases

What shapes perceptions of whether the healthcare system takes patient concerns seriously and how do they affect patient health?

Patients, like many of the 11.2% of Americans with chronic pain, can feel that providers do not take their health concerns seriously. The goals of this research are: 1. identify factors (e.g., race, gender, SES) that affect perceptions of how seriously the healthcare system takes the concerns of patients across a variety of conditions (e.g., fibromyalgia, lupus) and, 2. test how these perceptions affect patient health... more »

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(@mbl2018)

AoU Research Priorities Use Cases

What shapes perceptions of whether the healthcare system takes patient concerns seriously and how do they affect patient health?

Patients, like many of the 11.2% of Americans with chronic pain, can feel that providers do not take their health concerns seriously. The goals of this research are: 1. identify factors (e.g., race, gender, SES) that affect perceptions of how seriously the healthcare system takes the concerns of patients across a variety of conditions (e.g., fibromyalgia, lupus) and, 2. test how these perceptions affect patient health... more »

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0 votes
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(@hhenrylai)

AoU Research Priorities Use Cases

What are the biological and behavioral factors that predict mesh complications after sling for stress urinary incontinence?

Stress urinary incontinence (SUI) is prevalent among women, yet the standard of care treatment – midurethral mesh sling – can lead in devastating mesh complications (dyspareunia that precludes sex, chronic pelvic pain, infection). Using national data, we will identify biological (eg, genomics, vaginal & urinary microbiome, race, comorbidities, metabolic syndrome) and behavioral (eg, smoking, physical activity) factors... more »

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2 votes
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(@hhenrylai)

AoU Research Priorities Use Cases

What are the biological, environmental, and behavioral factors associated with the longitudinal trends of interstitial cystitis?

Interstitial cystitis (IC) is defined by the hallmark symptoms of chronic pelvic or bladder pain, often accompanied by urgency or frequency of urination. Using data from over 1 million men and women, we will examine the natural history and longitudinal trends of IC symptoms over 10 years in a diverse population that are traditionally underrepresented in IC research. We will also examine the biological, environmental,... more »

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6 votes
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(@hhenrylai)

AoU Research Priorities Use Cases

What are the biological, environmental, and behavioral factors associated with the longitudinal trends of interstitial cystitis?

Interstitial cystitis (IC) is defined by the hallmark symptoms of chronic pelvic or bladder pain, often accompanied by urgency or frequency of urination. Using data from over 1 million men and women, we will examine the natural history and longitudinal trends of IC symptoms over 10 years in a diverse population that are traditionally underrepresented in IC research. We will also examine the biological, environmental,... more »

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6 votes
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(@blacktherapistsrock)

AoU Research Priorities Use Cases

Can improvement in emotional health using psychotherapy increase physical health while reducing risk factors of obesity.

Black Therapists Rock engages over 19,000 psychotherapists who work with vulnerable populations. We have noticed a correlation of improved health outcomes in clients who have utilized Internal Family Systems (IFS), a psychotherapy model that focuses on healing the emotional wounds developed in childhood. We wish to expand upon this data, by employing more therapists to use this model, while advocating/recruiting participants... more »

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8 votes
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(@lisatheking)

AoU Research Priorities Use Cases

Could a pre-operative bilateral SIJ injection for lumbar fusion candidates be a diagnostic tool to identify SIJ pain patients?

Sacroiliac joint (SIJ) pain, an elusive generator of lower back pain (LBP), affects 10-30% of lumbar patients with nonradicular pain. However, there is no diagnostic indicator that can be used as a reliable tool to screen SIJ pain. This prospective study uses a pre-operative bilateral injection, targeting a goal to develop a diagnostic tool to screen the incidence of SIJ problems. Expected outcome(s) is this procedure... more »

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2 votes
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(@sjogrens.syndrome.foundation)

AoU Research Priorities Use Cases

Can we find better treatments for neuropathic numbness and pain in Sjögren's and other autoimmune diseases?

Peripheral neuropathies are common in Sjögren's and related autoimmune diseases and can be a presenting symptom of Sjögren's. Burning pain and numbness in the extremities, trigeminal neuralgias, weakness, poor balance and altered gait can occur. Symptoms can interfere greatly with quality of life and function. This study would focus on identifying better treatments to address these symptoms in Sjögren's and autoimmune... more »

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26 votes
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(@sjogrens.syndrome.foundation)

AoU Research Priorities Use Cases

Can we find better treatments for neuropathic numbness and pain in Sjögren's and other autoimmune diseases?

Peripheral neuropathies are common in Sjögren's and related autoimmune diseases and can be a presenting symptom of Sjögren's. Burning pain and numbness in the extremities, trigeminal neuralgias, weakness, poor balance and altered gait can occur. Symptoms can interfere greatly with quality of life and function. This study would focus on identifying better treatments to address these symptoms in Sjögren's and autoimmune... more »

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26 votes
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(@dlwn83)

AoU Research Priorities Use Cases

Opioid epidemic study: can combining ultra-low-dose naltrexone with an opioid help prevent negative psychosocial outcomes?

A randomized controlled study to determine if the combination of ultra-low-dose naltrexone with an opioid can provide better psychosocial outcomes for chronic pain patients. It would compare the results of treatment with various common opioids both alone and in combination with ultra-low-dose naltrexone. The goal is to see which treatment yields the best psychosocial outcomes and pain relief. Preliminary studies suggest... more »

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4 votes
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(@ben.dorshorst)

AoU Research Priorities Use Cases

Is there a genetic component to conditions such as fibromyalgia, chronic pain, chronic fatigue, anxiety and depression?

Utilize existing health records, genomic and epigenomic data to identify factors that predispose or are otherwise associated with the conditions of fibromyalgia, chronic pain, chronic fatigue, anxiety and depression.

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22 votes
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(@nfschor)

AoU Research Priorities Use Cases

Are there patient characteristics that predict resilience to and coping strategies and treatments chosen for recurrent pain?

Identify subsets of All of Us participants with chronic pain of various types. Administer questionnaire that asks in general about coping mechanisms, self-perceived pain tolerance, interference of pain disorder with function, child and adult exposures to adverse life experiences, history of depression/PTSD, drivers of decision of whether or not to treat an episode of pain, use of pharmacological therapies, use of non-pharmacological... more »

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59 votes
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(@rwells)

AoU Research Priorities Use Cases

Can meditation be used to decrease pain medication required after a painful procedure.

If meditation training is provided before a planned painful procedure, and practiced, can it decrease the amount of analgesia needed to achieve comfort after the procedure has been performed? Patients should be offered meditation training anticipating a planned procedure and have them practice the technique for at least a week prior to the procedure. (Ideally they would not be in pain while being taught or practicing.)... more »

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9 votes
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(@r.umrani)

AoU Research Priorities Use Cases

What is the effect of exercise on pain levels in individuals with sickle cell disease?

Goal: determine the effect of regular and structured exercise on pain levels in individuals with sickle cell disease. Method: RCT with a group who perform at least 150 mins a week of moderate physical activity eg 30 mins of weight lifting 5days/week Track daily pain levels using numeric pain rating scale from individuals in the exercise group, and the control. Can also track pain episodes and crises per individual, and... more »

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11 votes
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